I wholeheartedly believe in the power of questioning in caregiving.* I recently had a conversation about vulnerability with a respected colleague of mine, a holistic psychotherapist. We began by listing the meanings of it, working with a dictionary definition. The full definition was surprisingly exhaustive, but the more familiar synonyms included:

  • raw
  • tender
  • exposed
  • over-powered
  • emotional
  • weak
  • needy
  • easy to hurt

Certainly not traits that many of us cultivate, especially during caregiving. What good is a needy caregiver, right? Wouldn’t we rather have traits like strength, autonomy**, and having it all together?

Then we looked further. Toward the bottom of the long list of synonyms came the ones that we found to be the most interesting:

  • counting on
  • humbled
  • forgivable
  • mortal
  • open
  • perceptive
  • receptive
  • accessible
  • responsive
  • sensible
  • sensitive
  • sentient

These could easily be a list of survival skills for caregiving.

  • Yes! As a caregiver, I did WANT to know who and what I could count on.
  • I WANTED to feel humbled by my role, to recognize and be comfortable with MY OWN mortality.
  • In my relationships, then and now, I want to be receptive, responsive, and accessible.
  • In my actions I want to be sensible, sensitive, and sentient (or knowing.)

In sum, this says to me that intimacy and interdependence DO make for a spirit-strong** and resilient person, the sort who can move WITH the twists and turns of caregiving and life, healing relationships, caregiving collaboratively***, and inventing new ways of managing life’s intricacies. THAT sort of caregiving  requires a degree of vulnerability.As if that wasn’t enough, other questions then presented themselves:

  • Isn’t vulnerability easier to manage for a person with faith? And,
  • Do we carry our childhood vulnerabilities into adulthood unnecessarily?

I saw the roots of my questionable relationship with vulnerability, and also that I could reframe it as a strength, giving me the ability to move forward with greater ease.
A final question came up as I wrote:

  • Then what is the relationship between vulnerability and healthy boundaries?

For sure I can say No to whomever or whatever I like, and there are times for doing so. But perhaps I’d better be sure that my No isn’t limiting my ability to live life fully, or snuffing out my opportunities to say Yes.
Caregiving is guaranteed to offer a steady supply of vulnerabilities, so might one goal be to allow caregiving to have its way with you****, knowing that vulnerabilities will show up? What do You think? What has been the role of vulnerability in Your life up to now? Could it be a source of strength for you as you move forward in your caregiving?

*For more on Questions for Caregivers, click here

**For more on Autonomy in Caregiving, click here

***For more on Uplifting Spirit During Caregiving, click here

****For more on Acceptance, click here


by Holly Whiteside,



There are 67 million family caregivers in the United States alone, and sadly, most are living their lives in crisis and overwhelm. This number is on the rise and the hardcore truth is that as a culture, we aren’t prepared for these numbers. The care of our aging population is falling upon the family, and the sooner we wake up and embrace this, the better off we’ll all be.

The reality is that there are ways to not only survive being a caregiver, but better yet, there are ways to thrive. But you have to know what to do. Sadly, many family caregivers are doing a lot of complaining about their new lot in life instead of figuring out: what to do and what not to do; and making some important changes.

If you are already in the throws of caregiving and you’re feeling like you’re standing in quick sand, then I want to tell you that it doesn’t have to be this way. There are things you can do that will reap big results. Help is available and you don’t have to do caregiving alone! In fact, you shouldn’t do caregiving alone.  When you said YES to caring for your loved one, you did it from your heart and probably had no idea of the challenges you would meet along the way. There are certain ‘secrets’ you need to learn that will help to set you on a path to Empowerment and a life balance.

Learning the art of resiliency is key, and if you are to thrive in your caregiving role, you need to not only learn, but also practice resiliency. Being resilient does not mean running on adrenaline day in and day out. In fact, it’s just the opposite.

Practicing the steps below will set you on your way to finding more balance in your life as a caregiver.

Put Systems and Procedures in Place – This is the ‘Business of Caregiving’ and you have to have systems in place and procedures to help you implement the systems. Just like operating a business, you have operational systems in place. Caregiving is no different. If you have avoided this step, take some time to systematize whatever you can. (You won’t always be able to stick to the plan, but having systems in place will really help you.) Don’t try to do too much at one time or you’ll become overwhelmed. Just tackle one or two things a week and when you have that mastered, do a couple more. (For more, see Cindy’s archived article ‘The Business of Caregiving.’)

Be Informed – Worry and anxiety happen when we don’t have enough information. Get educated and stay informed. Information is available everywhere. Make sure you are getting yours from a credible source.

Be clear about what you can and cannot do – Getting clear about your personal limitations is key. Too many caregivers fail to think about this and they end up in physical and emotional exhaustion.

Manage the guilt – This is hugeYou cannot manage caregiving well from a place of guilt. Guilt is a driving force for many caregivers. Getting a handle on it is extremely important for your personal well-being.

Manage the daily tasks – You don’t have to do everything in one day or even one week. Scheduling the daily tasks (just like you do at work) will help you slow down.

Stop trying to be Perfect! – In other words, cut yourself some slack!

Get Help! – Help, like information, is everywhere, but you need to find the right help and more importantly you need to ask for it.  Help doesn’t usually show up until you ask.

Take Time Off – Plan your schedule as far in advance as possible and make time for you. This is really not optional.  If you avoid this step, you will end up experiencing caregiver burnout.

Maintain a Sense of Humor – There are funny moments in caregiving and it’s okay to laugh about them.

Don’t Stuff Your Feelings! Your feelings live inside you for a reason and you must honor them. If you don’t honor them, but instead stuff them, they will always find a way to come out, and it won’t always be pretty.

Get Rest, Calm Down and Relax. Sleep if You Can  – Learning ways to calm your mind while resting your body is key. You might try a quiet session of getting comfortable and listening to soulful music. Allow yourself to drift off.

Celebrate Your Accomplishments – This seems rather simple, but sadly, most caregivers spend little or no time celebrating much of anything.

Be Grateful – If you don’t practice gratitude, try getting a journal and writing down everything (no matter how small) that you are grateful for. 

Nurture Your Personal Spirituality – There is more and more evidence that those individuals who have a spiritual practice cope better with life’s challenges.

Bear Witness – Often just listening and lending comfort to your loved one is enough. You don’t have to always entertain.

Focus on Today – This is all we have. Caregivers spend unnecessary time worrying about the future. You can’t control the future, you can only (partially) control today. For today, live in the moment. Embrace the compassionate act of caregiving.

 by Cindy Laverty, Action Coach

“NORMAL” – A CAREGIVER’S OBSTACLE? by Holly Whiteside, Mindfulcaregiving Guide

She and her mother had always (or never) been friends. Her family mostly (or rarely) got along with each other. Her love life wasn’t what she had hoped it would be (or was really quite all right.) Her marriage (or singledom) suited her (or didn’t.)

Then her mother became older. She slowed down and everyone said “That’s normal.” But then the daughter noticed that her mother seemed emotionally down and everyone said, “That’s not normal! Better give her meds. Give her time. She will be back to normal in no time.”

She worked hard to keep her mother smiling and to keep the rest of life running as normally as possible—going to work, doing the laundry, to bed by 11:00—but then she would lie in bed and  (wisely) wonder, “What’s really happening?” She had been working so hard to nail life down to some state of normalcy that she had lost her connection to life and her mother as they really were.

The problem is that aging is natural change, and though it  can be useful to identify changes, measuring success using the benchmark of normal, (as though it’s a static state of being), adds a damaging undercurrent of stress. Trying to hold aging still at some predetermined state of normal means resisting life’s natural progression. We are who we are—some blend of our genes, our upbringing, our spark of unique individuality, the choices we have made. Our families are most likely dysfunctional in some way, since the state of functionality in families is, at best, supremely rare. Throughout our lives we change, we grow, we learn, hopefully incrementally becoming more complete, and at any point in that continuum we are who we are. We can only do what we can do. We might as well enjoy the life we have as much as possible. Acceptance of change makes enjoyment more accessible, especially for the caregiver. Acceptance is healing.

When her mother died, the daughter was stricken (or elated.) She couldn’t quite function as normal. People said, “You’re grieving. That’s normal.” But when a month had passed, two months, people began to say, “It’s time to bounce back. Maybe she needs meds. She needs to get back to her normal life.”

Luckily she asked herself the real question, “What IS normalcy anyway? What’s lost by spending so much energy trying to pretend that life is normal? What if I met it on its own terms, asking instead, “How could I move with life?” She let go of the idea of normal as a benchmark and began telling the truth.  She looked forward, not back. She listened to her heart more than to the opinions of others. Caregiving had taught her how to be her own best self, right now. The next thing she knew, she was inventing a very different life and way of living that suited her better than anything she had previously known.

by Holly Whiteside,

THE DEMENTIA CONFESSIONAL, by Lori La Bey of Alzheimer’s Speaks

I have found it interesting to notice how I have dealt with my Mother’s Dementia over the past thirty years, the phases I have gone through.  I thought maybe, just maybe, it might help you on your own Dementia journey.  

The questions I have found myself asking are:

  •  Is this situation normal?
  •  Are my thoughts and feelings normal?
  •  Heck, let’s cut to the chase, am I normal?

And here are a few of my reactions to life with memory loss.

  • Out and out denial.  Not happening in my family!
  • Need for control

– Recognizing there is a problem and thinking I can fix it.

– Knowing there is a problem and I can make it better.

– Realizing I can’t fix Mom but I sure as heck can fix everyone else.

– Control… not working… time to readjust my game plan once AGAIN!

  • Coming to Acceptance

– Trying hard to let go of control, but slipping up routinely and feeling horrible that I’m not a better person.

– Working harder, feeling more comfortable with being spontaneous and looking for joy filled moments.

– Finding some peace in letting go of blaming myself, others and God.

  • Peacefulness is around the corner

– Learning to adjust to “just being.”  Going with the flow of Dementia.

– Applying this new perspective and skill set into all areas of my life. This was HUGE and life changing on many levels.

  • Appreciation

– Finding out how amazing, loving, peaceful and calm my life has become.

– Being filled with gratitude, thankful for what I still have with my mother on this path of dementia.

  • Confessional

– Finding refuge in the silence with mom now in her end stages.

– Vulnerability appears to take over as I let go even more; feeling comfortable enough to expose my true inner thoughts and feelings to my mother who cannot respond as I so deeply want her to.

– Grief and guilt for the person I so longed to be to my mother.

– Unworthiness and strong feelings that I have failed Mom in many ways.

– Submitting fully to my higher powers and my mother, asking forgiveness.

– Releasing of my sins, appreciating I have done the best I could do during this long journey.

– Achieving once again another new level of unconditional love that I did not know existed prior to Dementia.

 by Lori La Bey, Alzheimer’s Expert  Alzheimer’s Speaks